Privacy Notice
Summary: We collect health-related answers and contact details only to show you potentially relevant clinical trials and, if you request it, to refer you to a study site. We do not sell data. You can withdraw consent and request deletion at any time by emailing data@nuria.hu.
1. Who we are
Nuria is a patient awareness and referral service operated from Budapest, Hungary. We help patients find clinical trials that may be recruiting for their condition, and we facilitate introductions between interested patients and study sites.
Data controller: Nuria · Address: Budapest, Hungary · Contact: data@nuria.hu
2. What data we collect and why
| Data | Why we collect it | Legal basis |
|---|---|---|
| Health condition, treatment history, physical ability (from screener) | To show you potentially relevant clinical trials currently recruiting in Hungary | GDPR Art. 6(1)(a) and Art. 9(2)(a) — your explicit consent |
| Name, email address, phone number (optional) | So a coordinator can contact you about trials you have expressed interest in | GDPR Art. 6(1)(a) — your explicit consent |
| Screener answers and consent record | To prepare a referral summary for a study site, if you consent to referral | GDPR Art. 6(1)(a) — your explicit consent to site sharing |
| Contact details (optional future alerts) | To notify you when new trials open that may be relevant to your condition | GDPR Art. 6(1)(a) — your separate optional consent |
3. How we use your data
- To search publicly available trial databases (ClinicalTrials.gov) for studies that may match your answers
- To show you plain-language descriptions of potentially relevant trials
- To allow a coordinator to review your submission before any referral is made
- To prepare and send a referral summary to a study site, only if you have consented to site sharing and a coordinator considers it appropriate
- To send you a confirmation email when you submit interest in a trial
- To alert you about future trials, only if you gave separate optional consent
We do not use your data for advertising, profiling, or automated decision-making.
4. Important limitations
Results from this service are preliminary only and do not confirm eligibility for any clinical trial. Nuria does not provide medical advice. All clinical and eligibility decisions are made by the study site and its qualified investigators.
5. Who we share your data with
- Study sites: Only if you have consented (Consent 3) and a coordinator has reviewed your submission and considers referral appropriate. We share your screener summary and contact details with the relevant study site only.
- Service providers: We use Resend (email delivery) and may use cloud hosting providers. All are required by contract to process data only on our instructions and in compliance with GDPR.
- We do not sell, rent, or share your data with advertisers, data brokers, or any other third parties.
6. Where your data is stored
All personal data is stored on servers located within the European Union. We do not transfer data outside the EEA.
7. How long we keep your data
| Data type | Retention period |
|---|---|
| Screener answers and consent records | 24 months from the date of consent, or until you withdraw consent — whichever is earlier |
| Contact details (referral) | 24 months from the date of referral, or until you request deletion |
| Optional future alert opt-in | Until you withdraw this specific consent |
| Contact form messages | 12 months |
8. Your rights under GDPR
You have the following rights regarding your personal data:
- Right of access (Art. 15): Request a copy of the data we hold about you
- Right to rectification (Art. 16): Ask us to correct inaccurate data
- Right to erasure (Art. 17): Request deletion of your data ("right to be forgotten")
- Right to restrict processing (Art. 18): Ask us to stop processing your data
- Right to withdraw consent (Art. 7(3)): Withdraw any or all consents at any time. Withdrawal does not affect the lawfulness of processing before withdrawal.
- Right to lodge a complaint: You may complain to the Hungarian Data Protection Authority (NAIH) at www.naih.hu
To exercise any of these rights, email: data@nuria.hu. We will respond within 30 days.
9. Cookies
We use only essential session cookies required for the site to function (e.g. to remember your language preference and dark mode setting). We do not use advertising cookies, tracking pixels, or third-party analytics.
10. Changes to this notice
We may update this Privacy Notice. The date at the top of this page shows when it was last updated. We will notify registered users of material changes by email.
Terms of Use
By using this website and submitting information through the trial finder, you agree to the following terms.
Nature of the service
Nuria is a patient awareness and referral facilitation service. It is not a medical service, a clinical trial sponsor, or a healthcare provider. We do not provide medical advice, diagnose conditions, assess or confirm eligibility for any clinical trial, or guarantee enrolment in any study.
Results shown are based on publicly available data from ClinicalTrials.gov and your self-reported answers. They are preliminary only.
Your responsibilities
- You must be 18 years of age or older to use this service
- You must provide accurate answers to the questionnaire
- You should discuss participation in any clinical trial with your own doctor before making any decisions
- You must not use this service on behalf of another person without their knowledge and consent
Limitation of liability
Nuria makes no warranty, express or implied, regarding the accuracy, completeness, or suitability of trial information shown. We are not liable for decisions made based on the results of this service. The study site is solely responsible for eligibility assessments and all clinical decisions.
Intellectual property
All content on this site is the property of Nuria unless otherwise stated. You may not reproduce or redistribute content without written permission.
Governing law
These terms are governed by the laws of Hungary. Any disputes shall be subject to the jurisdiction of Hungarian courts.
Contact
For questions about these terms or the privacy notice: data@nuria.hu